Subscription
 
Q. How do I sign up for an obligation free 30-day trial?

Click on the image below to sign up.

My Bowel Cancer My Voice - Healthcare professional


Click on FREE TRIAL button to begin using the patient-centred and scientifically validated ICHOM Colorectal Cancer Standard Set of patient-reported outcomes with your patients.
subscription options

Enter your contact information.
Billing information 1
Untick the box in the Billing Information section if your billing information differs from your contact information and provide the appropriate details.
Billing information 2
Enter your credit card information. Your card will only be charged if you decide to continue your subscription at the end of the free trial period.
Billing information 3

Click on the hyperlink to view the Terms of Use.
Terms Of Use
If you agree with the Terms of Use, tick the box, and click Submit.
Agree with terms of use
Check your inbox for an email from This email address is being protected from spambots. You need JavaScript enabled to view it. with instructions on how to activate your account.
Successful subscription screen
Click on the link provided to activate your account and create a password. 
Create your password welcome email
Enter your preferred password. 
 
For security reasons, please ensure it includes a minimum of 8 characters, including:
  • 1 uppercase letter
  • 1 lowercase letter
  • 1 number
  • 1 special character

Activate your account

PROMs Questionnaire Clinician 6
 
| Logging in to your account

Q. How do I log in to my account?

Once you’ve registered, you can log in to your account at any time using your username (usually your email address) and the password you created, by visiting https://healthie.pulseinfoframe.com/login.
Healthie log in page

Q. What if I forget my password?
 
If you forget your password, click the 'reset password' link.
 
A prompt will appear asking you if you want to receive an email with a new password.
 
Click 'Ok'.

Reset Password Prompt

A secure, auto-generated password will be emailed to you which you can use to log in.
 
You can continue to use the new password provided or you can change it to something more meaningful to you from within your dashboard. 

Q. What if I want to change my password?
 
To change your password, you will need to be logged into your account.
 
Hover your pointer over your username located in the top right-hand corner of your dashboard.
 
A pop-up menu will appear.
 
Click 'Settings'.
User settings

Your 'User Settings' will display.
 
Enter your user details, tick the 'reset password' box.
 
Enter the new password you would like to use.
 
Please remember, for security reasons your new password must have at least 8 characters including:
  • 1 lower case letter
  • 1 upper case letter
  • 1 number
  • 1 special character

Confirm the new password by entering it again in the second box provided.

When finished click 'Save'.


User settings 3

PROMs Questionnaire Clinician 4
 
| My Dashboard

Q. How do I view my dashboard?

To view your privacy-protected online dashboard, you must log in to healthie at https://healthie.pulseinfoframe.com/login. Follow the steps above.
 
When you log in to your dashboard you will have access to the following features:
  • Patient Management
  • Forms (Surveys)
  • Administration
Your home screen provides you with an instant view of patients in your care who have registered.
 
In addition, you can see in real time how many of your patients have submitted their profile information and completed questionnaires.
 
As more patient information is entered, your dashboard view will change, providing you with instant access to valuable reporting data.
Dashboard Clinician
PROMs Questionnaire Clinician 8
 
| Administration
 
Q. How do I invite a patient?
 
To invite a patient, open the Administration Folder in the drop-down menu on the left of your screen and click on ‘Invite Patient’. After you enter the patient’s name and email address, click send.
Invite a patient
Your patient will receive an invitation from This email address is being protected from spambots. You need JavaScript enabled to view it. inviting them to participate in My Bowel Cancer, My Voice and share their patient-reported outcomes with you. The email will include full instructions on how to get started.
| Patient Management
 
Q. How do I see which of my patients have registered to participate in My Bowel Cancer, My Voice?
 
Click on ‘Patients’ in the left-hand drop-down menu to open the Patient Management view.
 
You will see the names of all patients who have been associated with your account, as well as their participation status (Active, Pending, Static).  
  • Active: logged in to My Bowel Cancer, My Voice and submitted their consent
  • Pending: invitation has been sent, but patient has not yet logged in
  • Static: patient received an invitation, but did not consent or never logged in; patient was deactivated following death; patient withdrew from participating

Clinician Patient Management

Q. How do I view my Patient’s Profile?

Find the patient’s name in the Patient Management section.
Under ‘Actions’ in the right-hand column, click the ‘View’ button.
Clinician Patient Management
The Patient Profile will open, and you will be able to view general demographic information the patient entered about themselves.
Clinician Patient About Me View 1

as well as their personal contact details.
Clinician Patient About Me View 2

information about their initial bowel cancer diagnosis,
Clinician Patient About Me View 3

contact details they provided for you (their specialist),
Clinician Patient About Me View 4

and contact information for their proxy, if they indicated on their consent form that they would like someone to assist them in completing their questionnaires.
Clinician Patient About Me View Proxy 5

PROMs Questionnaire Clinician 3
 
| Forms (Surveys)
 
Q. Where do I go to access the questionnaires?
 
To access the questionnaires, click on ‘Forms’ in the menu located to the left of your dashboard. After the ‘Forms’ folder opens, click on ‘Surveys’.
Dashboard Forms Surveys

When the ‘Surveys’ folder is open, you will be able to view the different My Bowel Cancer, My Voice questionnaires.

These include clinical questionnaires as well as patient questionnaires.

There are seven (7) different questionnaires in total. Three (3) clinical questionnaires and four (4) patient questionnaires.
 
When your patient submits a questionnaire, you will be able to view it here.

NOTE: No questionnaires will be available for viewing or completion in your dashboard until your patient(s) has registered, submitted their consent form, and authorised to share their details with you.
Surveys Clinician dashboard

Q. What do the different icons that appear to the left of the questionnaires mean?
 
In the column to the left of the questionnaire list, icons will appear to indicate the status of the questionnaire.
  • The pencil icon indicates the questionnaire is open and can be completed.
  • The hourglass icon indicates the questionnaire will be available soon.
  • The calendar icon indicates a questionnaire has expired and is no longer available for completion. To ensure data validity, each questionnaire remains open for completion for 7 days (patient) or 14 days (clinician). Reminder emails are sent to let you and the patient know when a questionnaire will be open, and an alert email is sent prior to it closing.

PROMs Questionnaire Clinician 1
 
Completing questionnaires
 
If a pencil icon appears in the left column next to a questionnaire, it is open and available for completion.
 
Generally, the questionnaires take less than 10 minutes to finish.

New Patient Clinical Baseline 2
 

Information you will be asked to enter includes the patient’s name, height and weight, basic clinical and tumour factors, as well as the clinical stage of the tumour(s) and any treatment(s) the patient may have already received.

All questions marked with an asterisk are required before the form can be submitted.

You can navigate the form by using the scroll bar located on the right of the form.

Click ‘Submit Form’ once you have entered all the necessary information and the form will be saved in the Surveys folder.
Clinical Baseline Questionnaire Form 

Viewing questionnaires
 
To view a questionnaire either you or your patient has completed, click on the magnifying glass icon in the right-hand column.

Surveys Clinician dashboard

Downloading and/or printing questionnaires
 
To download a questionnaire, first open it for viewing once it has been completed and then click on the ‘Save as PDF’ button.
 
To print, click on the ‘Print’ button.

PROMs questionnaire

| Understanding your patient’s results

PROs are patient-centred and relate not just to survival; the questions address areas affecting your patient's ability to lead a productive life, during and beyond bowel cancer treatment and care.
 
Their responses are converted into PRO scores which reflect the results they care most about when seeking treatment (e.g. functional improvement and the ability to live a normal, productive life) and create an information-base against which the two of you can monitor and assess their progress, before, during and after their bowel cancer treatment.
Baseline Clinician patient questionnaire

Their scorecard appears on the cover of their Outcomes Summary Report.
The summary table includes the issues that were identified as the most important to bowel cancer patients during the development of the ICHOM Colorectal Cancer Standard Set.
 
Their scores are based on the answers they provided in their questionnaire and are calculated using scientifically validated scoring methods.
 
The questions are divided into three categories: function-related, symptom-related, and overall health/quality of life.
Function-related questions cover things like how the patient is feeling physically and emotionally, and whether their physical or medical treatment is interfering with their family life or social activities or causing them financial difficulties.
  • A high score on the functional scale indicates they are functioning well. This is what they want to aim for.
  • A low score on the functional scale suggests their cancer or treatment is affecting their ability to function in a way that needs to be considered.

Symptom-related questions cover issues that can often be overlooked, such as fatigue, pain, nausea/vomiting, appetite loss, sleep disturbance, sore skin around the stoma, constipation, diarrhoea, or sexual dysfunction.

  • A high score on a symptom scale/item indicates they may be experiencing symptoms or issues that are negatively affecting them and need attention.
  • A low score on a symptom scale/item indicates they are tracking well and that the issue in question is currently not of concern for them.

The two questions relating to how they would rate their overall health and quality of life provide a good indicator of how they are feeling generally. 

  • A high score for the global health status/QoL represents a high QoL (quality of life).
  • A low score for the global health status/QoL suggests cancer and treatment are affecting their quality of life in significant ways that require investigation and follow up.

The scores can be compared against published data, e.g. by using the data for comparable groups of patients published in the EORTC QLQ-C30 Reference Values manual (Fayers et. al., 1998). In the Reference Values manual, data are shown for the main cancer sites, divided by stage of disease.
 
General population data based on large random samples from the general population in Norway and Sweden, and females in Denmark are also published (Hjermstad et al., 1998; Klee et al., 1997; Michelson et al., 2000).
Patient Questionnaire Clinician View from Dashboard

Discuss your patient’s scores with them, as they can help highlight what matters most to them during their treatment and care and can be used to track their progress over time.
 
By prioritising the concerns your patients consider to be most important, PROs can help you deliver treatment and care that is more personalised, responsive, and effective - giving real meaning to the term 'patient-centred care'.
Q. What happens next?

As your patient progresses through treatment and beyond, they will be asked to complete additional patient reported outcome questionnaires (at least annually – frequency is determined by their diagnosis and treatment plan), allowing you both to track their progress over time.

A reminder email will be sent 7 days in advance to the email address your patient provided, alerting them when a new questionnaire is available for completion.
 
You will also receive an email reminder alerting you when a clinical questionnaire is available for you to complete on your patient’s behalf.
 
Frequency is determined by your patient’s diagnosis and treatment plan and will be in sync with their patient-reported outcome questionnaires.
 
Completing questionnaires over time, will enable you and your patients to
  • track their progress,
  • gain a long-term view of the impact bowel cancer and treatment has had on them, and
  • identify areas where additional support might help them to live your best life.

Timeline 1

Timeline 2

PROMs Questionnaire Clinician 7

| Changing your subscription options

Q. I have changed my mind and no longer wish to participate in My Bowel Cancer, My Voice. How can I unsubscribe?
 
To unsubscribe from My Bowel Cancer, My Voice, click on ‘Administration’ in the drop-down menu to the left of your dashboard.

Select ‘Subscription’ and the Subscription Management screen will open.

Click on the Unsubscribe hyperlink.
Subscription management
A pop-up box will appear to confirm you would like to cancel your subscription.
Unsubscribe

If you are certain you no longer want to participate or have access to the system click ‘Submit’ and your account will be cancelled.
Unsubscribe 2

Q. How do I update my credit card details for my next subscription payment?
 
To update your credit card details, click on ‘Administration’ in the drop-down menu to the left of your dashboard.

Select ‘Update Credit Card Info’ and enter your new information in the space provided. Click ‘Submit’ when complete.
Q. How does the My Bowel Cancer, My Voice payment appear on my credit/debit card statement?
 
The payment charge will appear on your statement as PULSE INFOFRAME INC 888-7878573 ON.
 
To view previous charges, you will need to refer to your credit card summary, as statements are not stored within healthie.
Q. Who do I contact if I am having issues with my account?

If you are having any issues with your account, please email us or call our Helpline 1800 555 494 (AEST) during business hours.

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