It was the hardest thing our family has ever had to deal with to date but I think it gave us an experience which shaped us into more empathetic and thankful people. At the time I found it very difficult to deal with what was happening. Living in rural South Australia, I felt completely isolated and didn’t feel there was anyone who truly understood what I was going through. I would have loved to know a resource like this was available at the time. I think it’s absolutely fantastic.
As you can understand, 38 is quite young for such a diagnosis. My father was later diagnosed with Lynch Syndrome (HNPCC) so my family has since gone through genetic testing, another process which helped shape us into the people we are today. I have inherited the genetic mutation and through all of my experiences I genuinely believe in the future I could really help people, support them and listen to them.